A Race Against Blindness One family’s inspiring journey to see the world together
🎙️ Episode 240: A Race Against Blindness
One family's powerful journey to preserve memories before time runs out
Hosts: Rob and Danny
Guest: Dr. Steven Johnson, founder of A Race Against Blindness
Description:
In this emotional and inspiring season finale, Rob and Danny sit down with Dr. Steven Johnson, a radiologist, Ironman athlete, and father on a mission. When his 9-year-old son Luke was diagnosed with a rare disease that will lead to blindness, Steven and his family launched an epic road trip to help Luke see as much of the world as possible while he still can. From fossil digs in Wyoming to hiking Glacier National Park, their travels were more than sightseeing—they were a race against time to fill Luke’s visual memory bank with unforgettable moments.
Dr. Johnson shares how the diagnosis changed his perspective on family travel, the power of staying flexible on the road, and how their nonprofit, A Race Against Blindness, is funding cutting-edge research to save Luke’s vision and that of others like him.
What You’ll Hear in This Episode:
- The emotional impact of a life-changing diagnosis
- How the Johnson family planned a memory-making bucket list trip
- Highlights from their journey through Canada, Washington, Montana, and Wyoming
- Luke’s favorite moments: fossil digs, military tanks, and glacier hikes
- Advice for families facing medical challenges
- The mission behind A Race Against Blindness and how you can help
Links & Resources:
📸 Follow the journey on Instagram and Facebook: @araceagainstblindness
🎁 Support their van giveaway fundraiser
📧 Plan your next family trip with Rob: rjones@starstufftravel.com
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